Royce and Keri Young welcomed their second child — a little girl — earlier this week, but were forced to quickly say their goodbyes as the infant died due to a rare, deadly disorder.
“We said hello and goodbye to our sweet Eva yesterday,” Keri wrote of her daughter alongside an Instagram photo of herself and her family in a hospital bed. “She was so perfect in her own little way.”
The Oklahoma couple made headlines earlier this year after revealing that they had decided to carry their daughter, Eva, to term, despite the fact that she’d likely only live for just a few hours.
The Youngs learned in December that Eva had Anencephaly, a rare condition in which an infant is missing the cortex of their brain. However, Keri planed to carry the child to term, and donate the baby’s organs to children in need.
“She’s gonna do more in her 24 hours or whatever than maybe we’ll ever do in our lives,” Royce told ABC News in a March interview on Good Morning America. “To be able to remember our daughter in that way is pretty powerful.”
In the Instagram photo, Keri sported a big smile as she held what appeared to be little Eva wrapped in a blanket. Beside her, Royce sat with a grin while he held the couple’s young son.
Royce shared a sweet photo of his own, uploading a black-and-white Instagram shot of himself holding the baby.
“We said hello and goodbye to our sweet Eva Grace yesterday,” he wrote. “Eva Grace Young — 4-17-17.”
The couple’s story made headlines after Royce, a writer for ESPN, officially opened up about the situation in a Facebook post in February.
He uploaded a photo of his sleeping wife alongside the lengthy post about his unborn daughter, writing, “A lot of people say things like, ‘I wouldn’t change anything’ after a trying circumstance, but I’m not about to say that. I would definitely change this if I could. I want my daughter to be perfect.”
Keri and Royce told ABC that they considered terminating the pregnancy, but decided against it.
Couple Carrying Terminally Ill Baby to Term Speaks Out
“You can be the most pro-life person in the world but until you sit there and you hear those words and you look at your future going forward, that’s when you gotta face the reality and make your own decision,” Royce said.
So, the family decided to donate the little girl’s organs, with the father telling ABC: “There’s another family out there hoping that their baby’s gonna get a kidney, knowing full well that that means that somebody else is gonna have to go through heartbreak. ”